Power of Community in “Engage for Equity PLUS” for Strengthening Equity-Centered Patient and Community-Engaged Research in Academic Health Centers
Keywords:community based participatory research, community engagement, Community Engagement, Institutional Transformation, engage for equity
Community based participatory research (CBPR) and patient/community engaged research (P/CEnR) in health have grown rapidly over the last decades. Despite the proliferation of individual collaborative projects, there has been a growing recognition that single projects are insufficient to improve health equity. Improved infrastructures are needed within academic health centers and other research institutes to better support investigators and community members to create and sustain effective research partnerships and projects. This commentary presents a two-year funded effort to transform CBPR and P/CEnR policies and practices at three academic health centers, using the evidence based Engage for Equity tools and strategies from the University of New Mexico Center for Participatory Research. We present a brief overview of the processes and results of Engage for Equity PLUS, with implications for other Academic Health Centers and Universities to take on similar goals of authentic and sustainable engagement.
Anderson A, Griffith DM. (2022) Measuring the Trustworthiness of Health Care Organizations and Systems. Milbank Quarterly, 100(2):345–64.
Boursaw, B., Oetzel, J., Dickson, E., Thein, T., Sanchez-Youngman, S., Peña, J., Parker, M., Magarati, M., Littledeer, L., Duran, B., Wallerstein, N., (2021) Psychometrics of measures of community-academic research partnership practices and outcomes, American Journal of Community Psychology, 67(3-4), 256-270.
Braithwaite, R., Akintobi, T., Blumenthal, D., Langley, M. (2020) Morehouse Model: How One School of Medicine Revolutionized Community Engagement and Health Equity, Johns Hopkins University Press.
Carter-Edwards, L., Grewe, M.E., Fair, A.M., Jenkins, C., Ray, N., Bilheimer, A., Gaurav, D., Nunez-Smith, M., Richmond, A., Wilkins, C. (2021). Recognizing Cross-Institutional Fiscal and Administrative Barriers and Facilitators to Conducting Community-Engaged Clinical and Translational Research, Academic Medicine, 96, (4), 558-565.
Commission, (2021), Commission on Justice and Equity Recommendations, Stanford School of Medicine.https://med.stanford.edu/content/dam/sm/diversity/documents/Commission/Stanford_Medicine_Commission_Report_Final.pdf
Duran, B., Oetzel, J., Magarati, M., Parker, M., Zhou, C., Roubideaux, Y, Muhammad, M., Pearson, C., Belone, L., Kastelic, S.H., Wallerstein, N. (2019). Promising Practices and Outcomes: Learnings from a CBPR cross-site national study, Progress in Community Health Partnerships: Research, Education, and Action, 13 (4), 337-352.
Eder, M. M., Oetzel, J., Yonas, M., D'Alonzo, K., eds. (2023). Examining community-engaged and participatory research programs and projects. Lausanne: Frontiers Media SA. doi: 10.3389/978-2-8325-3165-5.
Fleming, P., Cacari-Stone, L., Creary, M., Greene-Moton, E., Israel, B., Key, K., Reyes, A., Wallerstein, N., Schulz, A, (2023). Anti-racist praxis: Fostering equitable processes and outcomes through community based participatory research, American Journal of Public Health, January, Vol 113, No. 1
Freeman E, Seifer SD, Stupak M, Martinez LS. (2014). Community Engagement in the CTSA Program: Stakeholder Responses from a National Delphi Process. Clinical Translational Science. 7(3):191–5.
Gewin, V., Tackle systemic racism to diversify health care and clinical research, 25 November 2022, Nature, https://www.nature.com/articles/d41586-022-04148-8
Harrison, J.D., Palmer N., Cabrera A., Fleisher, P., Wong, E., LeSarre, M., Grumbach, K., Banta, J., Tealer, L., Reynolds, A., Wassman, A., Rose, T., Nguyen, T. (2022). Addressing the challenges of conducting community-engaged research during COVID-19: Rapid development and evaluation of a COVID-19 Research Patient and Community Advisory Board (PCAB), Journal of Clinical Translational Science6(1): e88. doi: 10.1017/cts.2022.413
Iton, A., Ross, R.K., Tamber, P., (2022) Building Community Power to Dismantle Policy-Based Structural Inequity In Population Health, Health Affairs, https://doi.org/10.1377/hlthaff.2022.00540
McCloskey, D. J., et al. (2011), Principles of community engagement (2nd ed.). NIH Publication No. 11-7782, Clinical and Translational Science Awards Community Engagement Key Function Committee Task Force on the Principles of Community Engagement. Bethesda, MD: National Institutes of Health www.atsdr.cdc.gov/communityengagement/pdf/PCE_Report_508_FINAL.pdf https://ncats.nih.gov/ctsa/community.
Nguyen TT, Wallerstein N, Das R, et al. (2021), Conducting community-based participatory research with minority communities to reduce health disparities. In: Dankwa-Mullan I, Perez-Stable EJ, Gardner KL, Zhang X, Rosario AM, eds. The Science of Health Disparities Research. Hoboken, NJ: Wiley: 171–186. https://doi.org/10.1002/9781119374855.ch11
Oetzel, J.G., Boursaw, B., Magarati, M., Dickson, E., Sanchez-Youngman, S., Morales, L., Kastelic, S., Eder, M., Wallerstein, N., (2022). Exploring Theoretical Mechanisms of Community-Engaged Research: Modeling Commitment to Collective Empowerment, Synergy, and Community Engagement in Research Actions through a National Study of Community-Academic Partnerships, International Journal for Equity in Health, 21:59 https://doi.org/10.1186/s12939-022-01663-y
Parker, M., Wallerstein, N., Duran, B., Magarati, M., Burgess, E., Sanchez-Youngman, S., Boursaw, B., Heffernan, A., Garoutte, J. & Koegel, P. (2020). Engage for Equity; Development of Community-based Participatory Research Tools. Health Education and Behavior 47 (3): 359-372.
Ponsford R, Collins M, Egan M, Halliday E, Lewis S, Orton L, et al. (2021) Power, control,
communities and health inequalities. Part II: measuring shifts in power. Health Promotion International, 36:1290–9. doi: 10.1093/heapro/daaa019
Sanchez-Youngman S, Adsul P, Gonzales A, Dickson E, Myers K, Alaniz C, Wallerstein, N. (2023) Transforming the field: the role of academic health centers in promoting and sustaining equity-based community engaged research. Frontiers in Public Health https://www.frontiersin.org/articles/10.3389/fpubh.2023.1111779
Sanchez-Youngman S, Boursaw B, Oetzel J, Kastellic S, Devia C, Scarpetta M, et al. (2021)
Structural community governance: importance for community-academic research
partnerships. American Journal of Community Psycholology, 67:271–83. doi: 10.1002/ajcp.12505
Sanchez-Youngman, S., Wallerstein, N., Appendix 7: Partnership River of Life: Creating an Historical Timeline, in Wallerstein, N., Duran, B., Oetzel, J., and Minkler, M., (eds) Community-Based Participatory Research for Health: Advancing Social and Health Equity, 3rd edition, San Francisco, Jossey-Bass, 2018, 375-378.
Shelton RC, Adsul P, Oh A, Moise N, Griffith DM. Application of an antiracism lens in the field of implementation science (2021). Recommendations for reframing implementation research with a focus on justice and racial equity. Implementation Research Practice. 2:263348952110494
Wallerstein, N., Oetzel, J., Sanchez-Youngman, S., Boursaw, B., Dickson, E., Kastelic, S., Koegel, P., Lucero, J., Magarati, M., Ortiz, K., Parker, M., Peña, J., Richmond, A., Duran, B., (2020). Engage for Equity: A Long-Term Study of Community Based Participatory Research and Community Engaged Research Practices and Outcomes, Health Education and Behavior, 47(3): 380-390.
Wilkins CH. (2018) Effective Engagement Requires Trust and Being Trustworthy. Medical Care. 56(Suppl 1):S6–8.
Copyright (c) 2023 Nina Wallerstein, Shannon Sanchez-Youngman, Elizabeth Dickson, Prajakta Adsul, Michael Muhammad, Tabia Henry Akintobi, Rhonda Holliday, LaShawn Hoffman, Howard Grant, Melissa Kottke, Lisa Goldman Rosas, Anisha Patel, Patricia Rodriguez Espinosa, Ysabel Duron, Starla Gay, Jason A. Mendoza, Kathy Briant, Rachel Ceballos, Elizabeth Carosso, Diane Mapes, Bridgette Hempstead, Tung Nguyen
This work is licensed under a Creative Commons Attribution 4.0 International License.